Tuesday, August 10, 2021

I dreamed of my little brother, Luis. He was a baby again, maybe a year old, and he was playing and he was happy. I wanted to stay asleep to see him. I'm trying to feel glad that I'm awake because now I can visit my real memories of him. 

My poor boy. 

I woke up this morning to find that I'm now considered an affiliate with Twitch. I'm not sure what this entails, but I know it involves me being "monetized." I think people will now get commercials or something when they try to watch me. I had the dream first, which means I think I need to set everything up so any money I make I can donate to Phoenix Children's Hospital. And I don't know...raise awareness? How to be a good sibling to someone with a chronic illness. There's already support for people with chronic illnesses, and I'm sure there are family counseling things like that. But maybe, just maybe, I can fit a niche with a group like "How to be a decent sibling and avoid the crushing regret that may arise, and no, it isn't alleviated by the fact that you honestly didn't know any better because you were also just a kid yourself."

I'm laughing through my tears here.

Hey, I try to let people know what they're in for. 

So yeah, that. Animal rescue too. Maybe some targeted fundraisers for families with a child that has chronic illness, and not to provide money exactly but something like a "master case manager" for families. So they can have all doctor info, insurance info, relevant chart notes, and all that stuff they might need. Yes, it would be a lot but in my line of work at least having the skeleton of an understanding of how to navigate the complexities of the system would help.

I remember being little and having no idea where all my little brother's medical equipment came from. How anything worked. How it was all connected. Our system is broken and I can't fix it, but I can maybe help people learn how to navigate it. This happens to families constantly. I know my poor mother still isn't very clear on insurance stuff even after everything. Luckily, my sister and I know that side now and can help her.

I don't know. Children's hospital and animal rescue. Maybe I can help. We'll see.