Friday, August 27, 2021

Ah, the delights of dealing with insurance. My make-brain-good medication is not the least-expensive out there, and on occasion I have to jump through a few hoops. It's funny, because even though I do have experience dealing with insurance issues, I still make the rookie mistakes, like not having all my information on hand, or phone numbers, or authorization numbers. It's mostly because in my job I have it all set up to deal with stuff like this and I can get most information with a click. None of us regular people have that. Not that I know of. 

Has anyone built such a system? I'm sure it could be done in Excel, but a personal system would be neat also. Of course, a lot of it would have to still be manual because no medical systems play nice with each other.

I've had this idea before.


Thursday, August 26, 2021

Cold pizza for breakfast/because it's delicious/ because it is pizza/and I want to eat it

That is all I could think of this morning. Perhaps I'm trying to think of too many things and the default is pizza. It's a good fall-back plan.

Everything and all is an emergency, so what's the rush? 

Listen to music and listen to stories. That would be good. 

Sit around wishing on eyelashes and shooting stars

Monday, August 23, 2021

This weekend was fun. I went to my cousin Caro's birthday party at noon, and swam a bit, and then I went to my friend Amy's birthday party in the evening, and squeezed a Corgi. 

It was fun. We played "Pin-The-Mustache-On-The-Teddy-Roosevelt." It was Mai-Linh and Tyler's daughter Claire's idea. Pretty amazing. We all tried to stick fake mustaches onto a life-sized cardboard cutout of the 26th president of the US. Everyone was a winner! Especially Teddy.

Saw Matt, AKA Surly. I remembered that I was thinking about a roast. That would be fun. 

Am I writing now, I wonder, to reflect, or just remember things? Maybe I should set a time to read this thing from start to finish. I could respond to my past self and be like "see, that WAS a bad idea and you knew it."

Ha, like I'd have listened to me.

 

Thursday, August 19, 2021

How exciting! I have no idea what I'm doing. 

Just gotta keep walking. What could go wrong.

I went in to the cafe next door and ordered breakfast. I'm not sure why. Other than I like breakfast. 

I do feel like I'm busy out of work now. So that's different. It's a good busy. Mainly I feel like there's a bunch of stuff I should be doing. Technology to acquire. Skills to learn. Capture cards? Overlays? Yes and yes. 

Also I have to call PayPal. And my insurance for coverage of my brain medication. Also two birthday parties to attend this weekend. I should vacuum. Yeah, I can vacuum real good.

Wednesday, August 18, 2021

Went out for dinner last night at Cock and Tails. It was great. Small place, with live music. I'd like to go again.

Last night I dreamed of a burning building. It was some kind of apartment complex with multiple living units, each with large glass windows. The fire was on the roof of the building, and slowly making its way downwards. I was running around it trying to help people get out. Some of them did, but a lot of them remained inside because they refused to believe there was a fire. In my dream, I was hurling large objects at the windows to try to smash the glass and drag the people out before the fire reached them. I cut myself pretty badly on my left arm and hand dragging people out through the windows. My friend Page was there too, and she insisted I patch myself up before I went back to try again, so I did. I remember feeling in that moment that I was possibly going to get myself killed trying to help people who didn't want to be helped. 

Tonight, I'll try to dream of puppies.

Monday, August 16, 2021

Hello! How are you? I'm good, thank you. I've been having a wild time. Four whole days off and I went to see The Suicide Squad, which was good, and I went to The Undertow, which was a great time. Now I'm back at work and doing the thing where I try to catch up with everything. 

There's a lot I have to learn about this video game streaming stuff. Probably should have spent more time checking that out on my time off. I did a little. Slowly but surely. It's like leveling up any RPG character. Unlock new abilities and figure out how they work with previous abilities. Can't try to do too much at once on your first play-through or you can get stuck with things you don't want.

I've been feeling pretty good though, overall. Like my beloved bamboo, I am growing in unusual directions, but still growing.

Wrap a little twine around it and everything should straighten out eventually. 

Tuesday, August 10, 2021

I dreamed of my little brother, Luis. He was a baby again, maybe a year old, and he was playing and he was happy. I wanted to stay asleep to see him. I'm trying to feel glad that I'm awake because now I can visit my real memories of him. 

My poor boy. 

I woke up this morning to find that I'm now considered an affiliate with Twitch. I'm not sure what this entails, but I know it involves me being "monetized." I think people will now get commercials or something when they try to watch me. I had the dream first, which means I think I need to set everything up so any money I make I can donate to Phoenix Children's Hospital. And I don't know...raise awareness? How to be a good sibling to someone with a chronic illness. There's already support for people with chronic illnesses, and I'm sure there are family counseling things like that. But maybe, just maybe, I can fit a niche with a group like "How to be a decent sibling and avoid the crushing regret that may arise, and no, it isn't alleviated by the fact that you honestly didn't know any better because you were also just a kid yourself."

I'm laughing through my tears here.

Hey, I try to let people know what they're in for. 

So yeah, that. Animal rescue too. Maybe some targeted fundraisers for families with a child that has chronic illness, and not to provide money exactly but something like a "master case manager" for families. So they can have all doctor info, insurance info, relevant chart notes, and all that stuff they might need. Yes, it would be a lot but in my line of work at least having the skeleton of an understanding of how to navigate the complexities of the system would help.

I remember being little and having no idea where all my little brother's medical equipment came from. How anything worked. How it was all connected. Our system is broken and I can't fix it, but I can maybe help people learn how to navigate it. This happens to families constantly. I know my poor mother still isn't very clear on insurance stuff even after everything. Luckily, my sister and I know that side now and can help her.

I don't know. Children's hospital and animal rescue. Maybe I can help. We'll see.